My fibromyalgia diagnosis appointment with my pain management doctor consisted of her asking me a long series of questions and then I filled out a two-page questionnaire identifying the areas which hurt. Since all of the 18 tender points that are the criteria for fibro hurt at that time, I “passed” readily. My new doctor immediately called a local compounding pharmacy to set me up with script for Low-Dose Naltrexone for inflammation. Then she booked me for a ketamine infusion for pain at my hospital and also wrote me a script for infusions at a center an hour away that can give them more frequently and at a higher dose. She gave me a large dose of her time and support. It was terrible yet not unexpected news but I couldn’t have asked for more compassion that day.
My doctor is opinionated, current, and no pushover. We might not always agree, but I respect her convictions and appreciate her drive to lift up her patients. We’re two strong women with a common goal: giving me as much functionality as possible while living with fibro.
I’m also in the process of booking either a phone call or a trip to seek a second opinion: I want to do everything possible to be well, especially for Rosebud and Junebug’s sake. If I’m worth going the extra mile for (Yes, of course I am, I never doubt it even when I feel like a wounded gazelle who can’t ford the river with the herd…blog post still to come re that John T. Barnes inspired imagery), then my yummy, sweet and spicy daughters and the love of my life husband are worth going an extra million-trillion miles for.
In the words of the late, great Tom Petty, “Hey baby, there ain’t no easy way out/I won’t back down/Hey I will stand my ground/And I won’t back down/Well I know what’s right/I got just one life/In a world that keeps on pushin’ me around/But I stand my ground/And I won’t back down.”